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    Last Updated: 01/09/2026

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    MediFind found 23 doctor with experience in Lhermitte-Duclos Disease near Grand Rapids, MI. Of these, 18 are Experienced and 5 are Advanced.

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    LocationClose
    23 providers found
      Marian M. Bercu
      Advanced in Lhermitte-Duclos Disease
      General Surgery
      Advanced in Lhermitte-Duclos Disease
      General Surgery

      Corewell Health Pediatric Neurosurgery - 35 Michigan St NE

      35 Michigan Street Northeast, Suite 3003, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      16+ years
      Languages Spoken:
      English

      Marian Bercu is a General Surgeon in Grand Rapids, Michigan. Dr. Bercu has been practicing medicine for over 16 years and is rated as an Advanced provider by MediFind in the treatment of Lhermitte-Duclos Disease. His top areas of expertise are Lhermitte-Duclos Disease, Pediatric Low-Grade Glioma (pLGG), Processing Deficient Progeroid Laminopathies (PDPL), Mucopolysaccharidosis Type 2 (MPS II, Hunter Syndrome), and Deep Brain Stimulation.

      Joseph A. Petronio
      Advanced in Lhermitte-Duclos Disease
      General Surgery
      Advanced in Lhermitte-Duclos Disease
      General Surgery

      Corewell Health Pediatric Neurosurgery - 35 Michigan St NE

      35 Michigan Street Northeast, Suite 3003, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      42+ years
      Languages Spoken:
      English
      Accepting New Patients

      Joseph Petronio is a General Surgeon in Grand Rapids, Michigan. Dr. Petronio has been practicing medicine for over 42 years and is rated as an Advanced provider by MediFind in the treatment of Lhermitte-Duclos Disease. His top areas of expertise are Lhermitte-Duclos Disease, Gorlin-Chaudhry-Moss Syndrome, Rathke Cleft Cyst, Juvenile Angiofibroma, and Craniectomy. Dr. Petronio is currently accepting new patients.

      Casey J. Madura
      Advanced in Lhermitte-Duclos Disease
      General Surgery
      Advanced in Lhermitte-Duclos Disease
      General Surgery

      Corewell Health Pediatric Neurosurgery - 35 Michigan St NE

      35 Michigan Street Northeast, Suite 3003, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      18+ years
      Languages Spoken:
      English

      Casey Madura is a General Surgeon in Grand Rapids, Michigan. Dr. Madura has been practicing medicine for over 18 years and is rated as an Advanced provider by MediFind in the treatment of Lhermitte-Duclos Disease. His top areas of expertise are Lhermitte-Duclos Disease, Koolen De Vries Syndrome, CHARGE Syndrome, Pediatric Low-Grade Glioma (pLGG), and Craniectomy.

      Learn about our expert tiers
      Linda Z. Rossetti
      Experienced in Lhermitte-Duclos Disease
      Pediatrics | Medical Genetics
      Experienced in Lhermitte-Duclos Disease
      Pediatrics | Medical Genetics

      Corewell Health Grand Rapids Hospitals Medical Genetics - 25 Michigan St NE

      25 Michigan Street Northeast, Suite 2100, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      10+ years
      Languages Spoken:
      English, Spanish
      Offers Telehealth

      Linda Rossetti is a Pediatrics specialist and a Medical Genetics provider in Grand Rapids, Michigan. Dr. Rossetti has been practicing medicine for over 10 years and is rated as an Experienced provider by MediFind in the treatment of Lhermitte-Duclos Disease. Her top areas of expertise are Smith-Magenis Syndrome, Miller-Dieker Syndrome, Chromosome 6q Duplication, and Chromosome 8p Deletion.

      David E. Burdette
      Experienced in Lhermitte-Duclos Disease
      Experienced in Lhermitte-Duclos Disease

      Corewell Health Grand Rapids Hospitals Epilepsy - 275 Michigan St NE

      275 Michigan Street Northeast, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      40+ years
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      David Burdette is a Neurologist in Grand Rapids, Michigan. Dr. Burdette has been practicing medicine for over 40 years and is rated as an Experienced provider by MediFind in the treatment of Lhermitte-Duclos Disease. His top areas of expertise are Seizures, Lennox-Gastaut Syndrome (LGS), Generalized Tonic-Clonic Seizure, Memory Loss, and Deep Brain Stimulation. Dr. Burdette is currently accepting new patients.

      Jessica R. Priestley
      Experienced in Lhermitte-Duclos Disease
      Pediatrics | Medical Genetics
      Experienced in Lhermitte-Duclos Disease
      Pediatrics | Medical Genetics

      Corewell Health Grand Rapids Hospitals Biochemical Genetics - 25 Michigan St NE

      25 Michigan Street Northeast, Suite 2100, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      8+ years
      Languages Spoken:
      English

      Jessica Priestley is a Pediatrics specialist and a Medical Genetics provider in Grand Rapids, Michigan. Dr. Priestley has been practicing medicine for over 8 years and is rated as an Experienced provider by MediFind in the treatment of Lhermitte-Duclos Disease. Her top areas of expertise are Fabry Disease, Ornithine Transcarbamylase Deficiency, Biotinidase Deficiency, and Multiple Sulfatase Deficiency.

      Swetha J. Sundar
      Experienced in Lhermitte-Duclos Disease
      General Surgery
      Experienced in Lhermitte-Duclos Disease
      General Surgery

      Corewell Health Pediatric Neurosurgery - 35 Michigan St NE

      35 Michigan Street Northeast, Suite 3003, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      10+ years
      Languages Spoken:
      English
      Accepting New Patients

      Swetha Sundar is a General Surgeon in Grand Rapids, Michigan. Dr. Sundar has been practicing medicine for over 10 years and is rated as an Experienced provider by MediFind in the treatment of Lhermitte-Duclos Disease. Her top areas of expertise are Thrombophlebitis, Arteriovenous Malformation, Subdural Hematoma, Lhermitte-Duclos Disease, and Spinal Fusion. Dr. Sundar is currently accepting new patients.

      Hayden M. Boyce
      Experienced in Lhermitte-Duclos Disease
      Neurosurgery
      Experienced in Lhermitte-Duclos Disease
      Neurosurgery

      Corewell Health Grand Rapids Hospitals Neurosurgery - 275 Michigan St NE

      275 Michigan Street Northeast, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      25+ years
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Hayden Boyce is a Neurosurgery provider in Grand Rapids, Michigan. Dr. Boyce has been practicing medicine for over 25 years and is rated as an Experienced provider by MediFind in the treatment of Lhermitte-Duclos Disease. His top areas of expertise are Essential Tremor, Parkinson's Disease, Subdural Hematoma, Deep Brain Stimulation, and Awake Craniotomy. Dr. Boyce is currently accepting new patients.

      Todd W. Vitaz
      Experienced in Lhermitte-Duclos Disease
      Neurosurgery
      Experienced in Lhermitte-Duclos Disease
      Neurosurgery

      Corewell Health Grand Rapids Hospitals Neurosurgery - 275 Michigan St NE

      275 Michigan Street Northeast, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      31+ years
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Todd Vitaz is a Neurosurgery provider in Grand Rapids, Michigan. Dr. Vitaz has been practicing medicine for over 31 years and is rated as an Experienced provider by MediFind in the treatment of Lhermitte-Duclos Disease. His top areas of expertise are Posterior Fossa Tumor, Primitive Neuroectodermal Tumor (PNET), Pituitary Tumor, Awake Craniotomy, and Turbinectomy. Dr. Vitaz is currently accepting new patients.

      Ashok K. Ramachandra
      Advanced in Lhermitte-Duclos Disease
      Pediatric Radiology | Radiology
      Advanced in Lhermitte-Duclos Disease
      Pediatric Radiology | Radiology

      Advanced Radiology Services - Grand Rapids

      3264 North Evergreen Drive Northeast, 
      Grand Rapids, MI 
       (5.4 miles away)
      Experience:
      15+ years
      Languages Spoken:
      English

      Ashok Ramachandra is a Pediatric Radiologist and a Radiologist in Grand Rapids, Michigan. Dr. Ramachandra has been practicing medicine for over 15 years and is rated as an Advanced provider by MediFind in the treatment of Lhermitte-Duclos Disease. His top areas of expertise are Cortical Dysplasia, Focal or Multifocal Malformations in Neuronal Migration, Subependymal Nodular Heterotopia, and Lhermitte-Duclos Disease.

      Andrew K. Nash
      Experienced in Lhermitte-Duclos Disease
      Radiology | Neuroradiology
      Experienced in Lhermitte-Duclos Disease
      Radiology | Neuroradiology

      Advanced Radiology Services - Grand Rapids

      3264 North Evergreen Drive Northeast, 
      Grand Rapids, MI 
       (5.4 miles away)
      Experience:
      18+ years
      Languages Spoken:
      English

      Andrew Nash is a Radiologist and a Neuroradiologist in Grand Rapids, Michigan. Dr. Nash has been practicing medicine for over 18 years and is rated as an Experienced provider by MediFind in the treatment of Lhermitte-Duclos Disease. His top areas of expertise are Stroke, CAPOS Syndrome, Subarachnoid Hemorrhage, and Herniated Disk.

      Rolf D. Hollstein
      Experienced in Lhermitte-Duclos Disease
      Experienced in Lhermitte-Duclos Disease

      Advanced Radiology Services - Grand Rapids

      3264 North Evergreen Drive Northeast, 
      Grand Rapids, MI 
       (5.4 miles away)
      Experience:
      24+ years
      Languages Spoken:
      English

      Rolf Hollstein is a Radiologist in Grand Rapids, Michigan. Dr. Hollstein has been practicing medicine for over 24 years and is rated as an Experienced provider by MediFind in the treatment of Lhermitte-Duclos Disease. His top areas of expertise are Aseptic and Alopecic Nodules of Scalp (AANS), CAPOS Syndrome, Vertigo, and Subarachnoid Hemorrhage.

      Amy C. Hollen
      Experienced in Lhermitte-Duclos Disease
      Family Medicine
      Experienced in Lhermitte-Duclos Disease
      Family Medicine

      Hollen Family Medicine

      1525 East Beltline Avenue Northeast, Suite 102, 
      Grand Rapids, MI 
       (5.4 miles away)
      Experience:
      30+ years
      Languages Spoken:
      English
      Accepting New Patients

      Amy Hollen is a primary care provider, practicing in Family Medicine in Grand Rapids, Michigan. Dr. Hollen has been practicing medicine for over 30 years and is rated as an Experienced provider by MediFind in the treatment of Lhermitte-Duclos Disease. Her top areas of expertise are Generalized Anxiety Disorder (GAD), Seasonal Affective Disorder (SAD), Diabetic Nephropathy, and Type 2 Diabetes (T2D). Dr. Hollen is currently accepting new patients.

      Richard Lichtenberg
      Experienced in Lhermitte-Duclos Disease
      Experienced in Lhermitte-Duclos Disease

      Advanced Radiology Services - Grand Rapids

      3264 North Evergreen Drive Northeast, 
      Grand Rapids, MI 
       (5.4 miles away)
      Experience:
      38+ years
      Languages Spoken:
      English
      Accepting New Patients

      Richard Lichtenberg is a Radiologist in Grand Rapids, Michigan. Dr. Lichtenberg has been practicing medicine for over 38 years and is rated as an Experienced provider by MediFind in the treatment of Lhermitte-Duclos Disease. His top areas of expertise are Lung Nodules, End-Stage Renal Disease (ESRD), Ascites, Vertebroplasty, and Bone Graft. Dr. Lichtenberg is currently accepting new patients.

      Experienced in Lhermitte-Duclos Disease
      Experienced in Lhermitte-Duclos Disease

      Advanced Radiology Services PC

      100 Michigan Ave Ne, 
      Grand Rapids, MI 
       (0.1 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      David Homa is a Radiologist in Grand Rapids, Michigan. Dr. Homa is rated as an Experienced provider by MediFind in the treatment of Lhermitte-Duclos Disease. His top areas of expertise are CAPOS Syndrome, Herniated Disk, Aseptic and Alopecic Nodules of Scalp (AANS), and Hepatic Hemangioma. Dr. Homa is currently accepting new patients.

      Experienced in Lhermitte-Duclos Disease
      Experienced in Lhermitte-Duclos Disease

      Kent Radiology PC

      200 Jefferson Ave Se, 
      Grand Rapids, MI 
       (1.0 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Mario Orsini is a Radiologist in Grand Rapids, Michigan. Dr. Orsini is rated as an Experienced provider by MediFind in the treatment of Lhermitte-Duclos Disease. His top areas of expertise are Pleurisy, Bronchogenic Cyst, Pleural Effusion, and Osteopenia. Dr. Orsini is currently accepting new patients.

      Experienced in Lhermitte-Duclos Disease
      Radiology | Neuroradiology
      Experienced in Lhermitte-Duclos Disease
      Radiology | Neuroradiology

      Kent Radiology PC

      200 Jefferson Ave Se, 
      Grand Rapids, MI 
       (1.0 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Daniel Spear is a Radiologist and a Neuroradiologist in Grand Rapids, Michigan. Dr. Spear is rated as an Experienced provider by MediFind in the treatment of Lhermitte-Duclos Disease. His top areas of expertise are Progressive Familial Intrahepatic Cholestasis Type 3, Progressive Familial Intrahepatic Cholestasis Type 2, Progressive Familial Intrahepatic Cholestasis Type 1, and Visceromegaly. Dr. Spear is currently accepting new patients.

      Experienced in Lhermitte-Duclos Disease
      Radiology | Interventional Radiology
      Experienced in Lhermitte-Duclos Disease
      Radiology | Interventional Radiology

      Kent Radiology PC

      200 Jefferson Ave Se, 
      Grand Rapids, MI 
       (1.0 miles away)
      Languages Spoken:
      English, Croatian
      Accepting New Patients

      Zdravko Skrtic is a Radiologist and an Interventional Radiologist in Grand Rapids, Michigan. Dr. Skrtic is rated as an Experienced provider by MediFind in the treatment of Lhermitte-Duclos Disease. His top areas of expertise are Ascites, Stomach Cancer, Peritonitis, Gastrostomy, and Bone Marrow Aspiration. Dr. Skrtic is currently accepting new patients.

      Advanced in Lhermitte-Duclos Disease
      Advanced in Lhermitte-Duclos Disease
      3264 N Evergreen Dr Ne, 
      Grand Rapids, MI 
       (5.5 miles away)
      Languages Spoken:
      English

      Bogna Targonska is a Radiologist in Grand Rapids, Michigan. Dr. Targonska is rated as an Advanced provider by MediFind in the treatment of Lhermitte-Duclos Disease. Her top areas of expertise are Tenosynovitis, Aseptic and Alopecic Nodules of Scalp (AANS), Splenomegaly, and Gas Bloat Syndrome.

      Experienced in Lhermitte-Duclos Disease
      Experienced in Lhermitte-Duclos Disease
      3264 N Evergreen Dr Ne, 
      Grand Rapids, MI 
       (5.5 miles away)
      Languages Spoken:
      English

      Bradford Betz is a Radiologist in Grand Rapids, Michigan. Dr. Betz is rated as an Experienced provider by MediFind in the treatment of Lhermitte-Duclos Disease. His top areas of expertise are Aortopulmonary Window, Aorta-Pulmonary Artery Fistula, Legius Syndrome, and Accessory Deep Peroneal Nerve.

      Showing 1-20 of 23

      Last Updated: 01/09/2026

      What is the definition of Lhermitte-Duclos Disease?

      Lhermitte-Duclos disease (LDD) is a very rare, benign (non-cancerous) brain tumor, called a dysplastic gangliocytoma of the cerebellum, that is characterized by abnormal development and enlargement of the cerebellum, and an increased intracranial pressure. LDD manifests most commonly in the third and fourth decades of life. Symptoms may include headache, nausea, cerebellar dysfunction, hydrocephalus, ataxia (problems with movement and coordination), and visual disturbances. Other features may include an enlarged brain (megalencephaly), hydromyelia, extra fingers or toes (polydactyly), partial gigantism, and/or a large tongue (macroglossia). Lhermitte-Duclos disease can occur as an isolated condition; it is also associated with a hereditary cancer syndrome called Cowden disease. Although the exact cause is unknown, genetic changes in the PTEN gene have been identified in some individuals with LDD.

      When should I see a Lhermitte-Duclos Disease doctor near Grand Rapids, MI?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Lhermitte-Duclos Disease doctor near Grand Rapids, MI?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Lhermitte-Duclos Disease doctors near Grand Rapids, MI?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Lhermitte-Duclos Disease doctors near Grand Rapids, MI?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Lhermitte-Duclos Disease doctor near Grand Rapids, MI?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Lhermitte-Duclos Disease doctor search results page. 

      Why is it important to get a second opinion from a different Lhermitte-Duclos Disease doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Lhermitte-Duclos Disease doctor near Grand Rapids, MI?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Lhermitte-Duclos Disease doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Lhermitte-Duclos Disease doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Lhermitte-Duclos Disease doctors near Grand Rapids, MI?

      Look for the filter feature on the left side of the Lhermitte-Duclos Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Lhermitte-Duclos Disease doctor that offers video calls?

      Look for the filter feature on the left-side of the Lhermitte-Duclos Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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